This is Evan’s story, told by his mother, Cathy Cole.
“Evan was diagnosed with Periventricular Leukomalacia, PVL and then cerebral palsy because of PVL at 23 months of age. Joe’s Kids was able to get Evan into physical therapy within a month to work on strengthening his muscles and help with his motor planning.
What has made Joe’s Kids stand out to me is the care of the staff. The office staff is friendly and has worked well with our family as we have had to switch schedules around as schools have changed from preschool to kindergarten.
A group was created last winter to teach and support parents whose children have sensory needs. It was informative as well as created a community of other parents who understand the challenges and were able to offer their experiences as well as having a place where we could openly share about our wins and our struggles.
What also stands out at Joe’s Kids is our physical therapist, Mindy. She has worked with Evan for almost 3 years and not only works on the skills that are tested but makes sure he is developing the skills for place and living in the real world. While climbing over the triangle ladder isn’t a skill that’s tested, it’s beneficial for playgrounds and giving him practice to motor plan. She scaffolded him every step of the way, even though my blood pressure would rise watching it. She knows what routine works for him, pushes him when needed, and gives grace when he’s having a hard time. Mindy always explains how I can best help him at home and offers ideas when I don’t know how to help.
I often say that every movement Evan makes has been one he has worked for. And it’s true. It may take him longer, but each new skill is one we celebrate and can attribute to the therapists that have spent so much time with him. We are truly thankful for Joe’s Kids, and it’s been such a blessing to our family!”